Hello and welcome to the Interstitial Cystitis/Painful Bladder Syndrome Support web page!
My name is Carin Willis and I am glad that you have found this website in your search for support for IC/PBS. This is a place where I am able to combine two passions in my life: writing and being an advocate for people suffering from IC/PBS. With this website I include reflections about living with IC/PBS in my blog and provide IC-related information and research. I have included links to IC/PBS related websites in both the U.S. and internationally on the Helpful IC Resources Page. I also try to provide information for both women and men suffering from IC/PBS as it is my hope that the IC community will continue to include men in the diagnosis of IC/PBS. I am humbled by the IC patients, doctors and IC supporters who reach out to me through this website and blog on a daily basis. It is for each of you, IC patient, advocate, family, friend and health care providers, that I created this website and I am grateful for your support and your willingness to reach out to me with your questions and your personal IC/PBS stories.
The IC/PBS website & blog now has over 9000 visitors and for the past five years this website/blog have been part of the the Best of the Web Blog Directory http://blogs.botw.org/Health/Conditions_and_Illnesses. In the summer of 2009 I was honored to have my IC story chosen to be featured on the Interstitial Cystitis Association (ICA) homepage (IC Blogs) www.ichelp.org.
This site will always be free of ads and other forms of revenue as this website is my gift to IC patients and their families as well as a thank you to all of the doctors, healers, friends and family who assisted me throughout the most difficult times of my IC journey. Please consider donating to the IC/PBS foundation or treatment center of your choice to further research, advocacy and support for IC/PBS.
January 25, 2015: For those of you who have been following this website and blog for the past five years you might notice a change in the number of blog posts, product reviews and IC doctor interviews. I have been busy over the past few years working with an incredible team of chronic pelvic pain advocates and doctors and we formally launched a new 501 (c) 3 non-profit one year called Bridge for Pelvic Pain. Most of my time and effort is now spent running Bridge for Pelvic Pain and spreading awareness about chronic pelvic pain issues and increasing our programs for patients. Please join us at www.bridgeforpelvicpain.org
(We are also on Twitter, Pinterest, Facebook and LinkedIn).