Hello and welcome to the Interstitial Cystitis/Painful Bladder Syndrome Support web page!
My name is Carin Willis and I am glad that you have found this website in your search for support for IC/PBS. This is a place where I am able to combine two passions in my life: writing and being an advocate for people suffering from IC/PBS. With this website I include reflections about living with IC/PBS in my blog and provide IC-related information and research. I have included links to IC/PBS related websites in both the U.S. and internationally on the Helpful IC Resources Page. I also try to provide information for both women and men suffering from IC/PBS as it is my hope that the IC community will continue to include men in the diagnosis of IC/PBS. I am humbled by the IC patients, doctors and IC supporters who reach out to me through this website and blog on a daily basis. It is for each of you, IC patient, advocate, family, friend and health care providers, that I created this website and I am grateful for your support and your willingness to reach out to me with your questions and your personal IC/PBS stories.
The IC/PBS website & blog now has over 7000 visitors and for the past three years this website/blog have been part of the the Best of the Web Blog Directory http://blogs.botw.org/Health/Conditions_and_Illnesses. In the summer of 2009 I was honored to have my IC story chosen to be featured on the Interstitial Cystitis Association (ICA) homepage (IC Blogs) www.ichelp.org.
This site will always be free of ads and other forms of revenue as this website is my gift to IC patients and their families as well as a thank you to all of the doctors, healers, friends and family who assisted me throughout the most difficult times of my IC journey. Please consider donating to the IC/PBS foundation or treatment center of your choice to further research, advocacy and support for IC/PBS.
With the new year fresh in our minds and our calendars I am filled with much hope, awe and inspiration with all of the doctors, researchers and IC advocacy non-profits, networks, and IC (and other related chronic pain conditions) that have found a common goal and passion in helping everyone touched by IC and chronic pain. There are a lot of mind-blowing (and pain reducing) treatments and support currently available and others just on the horizon. As we look ahead in 2013 I hope to be able to bring more interviews, treatment and medical community news, and inspiration to the IC community.
***We are excited to announce our biggest news to-date! We are finally able to unveil that we are launching a new global non profit to help chronic pelvic and sexual pain patients later this year. The following is an Indiegogo Campaign that we launched August 20th in order to fund the initial start up costs.
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Thanks to the countless number of people with chronic pelvic and sexual pain conditions, medical doctors and patient advocates, we are so excited to announce the official launch of our new non-profit formed to help people with chronic pelvic and sexual pain conditions: Bridge for Pelvic Pain! Please connect with us on our new website and look for updates about the unveiling of our new logo as well as brand new Twitter and Facebook pages. We are honored to be able to serve the global chronic pelvic and sexual pain community. Bridge for Pelvic Pain website: www.bridgeforpelvicpain.org