Soon to be released video about chronic pelvic pain "Healing the Pain 'Down There' A Guide for Females with Persistant Genital & Sexual Pain"
It has been a few years since I had the opportunity to speak with Dr. Elliot Lander who had recently created a non-embryonic stem cell treatment center in California. Dr. Lander and the rest of his medical team have introduced ground-breaking work to America by bringing the first non-embroynic stem cell treatment protocols learned from China and other countries. Since the last time we spoke, Dr. Lander's let me know that he and his team have treated a number of IC/PBS patients with Elmiron to restore their glycosaminoglycan(GAG) layer, but not in the traditional long-term and orally administered way. Many IC/PBS patients have spoken with me over the years and shared with me how Elmiron has or hasn't helped with their painful bladder symptoms, mainly because when taken orally, Elmiron has to be taken upwards of six months before the patient notices a lessening of their symptoms. So the work that Dr. Lander shared with me about a new and innovative way of administering Elmiron immediately drew my attention: Urobex.
Urobex is a method of instilling Emiron directly into the bladders of IC/PBS or other cystitis patients via a catheter but instead of utilizing a 'wash' method, the Elmiron is adminstered to the bladder layer directly through phospholid liposomes as nanocarriers. Nanocarriers are teeny particulates used to treatment of numerous diseases. The liposomes used within the nanocarriers of Dr. Lander's treatment is made out of phospholipids from soybean lecithin which is a food and make up grade soybean. Dr. Lander spoke very positively about the results they are having in some IC/PBS patients treated within their office using a 30-minute Urobex treatment protocol. For more information about Dr. Lander's stem cell treatment therapy, Urobex and nanocarriers please go to the following links:
For once I am almost at a loss for words as my heart is filled with gratitude for all of the ICPBS patients, doctors and patient advocates who have offered up support and encouragement to myself and others through sharing of your personal stories and sharing the work that you do to help others suffering from chronic pelvic pain conditions. The 4th birthday of ICPBSSupport page could not, would not be here if it wasn't for each of you and I raise my wine glass filled with IC-friendly sparkling water and I cut into some IC friendly fruit and pretend that next to the fruit is my favorite birthday cake: Angel Food as I celebrate with you another milestone for this support forum.
The birthday milestone for ICPBSSupport follows only a handful of days after I attended the first annual Alliance for Pelvic Pain in Bethlehem, PA created and hosted by Dr. Robert Echenberg, Executive Director Alexandra Milspaw, PT Amy Stein, Vulvodynia advocate Nancy Fish and Dr. Coady. The Alliance was less a conference and more of a gathering together of a team of very passionate and compassionate doctors and healthcare practitioners bringing together wisdom, encouragement and the overall 'picture' of chronic pelvic pain conditions, how they overlap and are connected, combined with wonderful support and mind/body/spirit ways of coping and healing. Every single person that I spoke with felt inspired, supported and finally able to connect and begin the healing process after realizing that we are not alone! I commend the entire Alliance team for putting together such a wonderful weekend and I also want to thank each of the participants who made the long and arduous journey to attend this event. My heart is overwhelmed with gratitude this week.