I hate to, yet again, draw comparisons to cancer because there really is no comparison to a chronic pain disease with a painful and incurable diagnosis of cancer, but I feel that I must draw the comparison solely because within the same international forum that I posted information on IC awareness there have been thousands of posts on cancer, all received with much gratitude and approval. I had never seen a post about IC and thought my posting for IC awareness would garner the same gratitude for spreading awareness about a disease that affects millions of women and men (like cancer) but was instead treated to a vindictive note that I should not be speaking about my 'cause'. I will not be quiet. And I do not consider IC to be my little pet 'cause'. I suffered serious, debilitating, suicide thought-driven IC pain and symptoms for five years and I have stayed active within the IC community because I want to be able to support the millions of other IC sufferers with words of encouragement and support. IC is not just a little pet cause of mine. IC is a PASSION for me and I want to be allowed the same respect for sharing awareness for those suffering from IC in the same vein as cancer awareness and cancer survivors. I refuse to allow one private note to quiet me or to think that in some way spreading awareness for an incredibly painful disease is shameful or inappropriate.
IC is real and I will never stop spreading the word about what the ICA, the ICN and doctors and researchers are doing world-wide to diagnose and treat this ravishing disease. I will not take a private note personally, but I will personally see that my efforts to spread awareness double in the coming year. Challenge me. I will use the same force and effort that I used to prove countless doctors that I could not get my IC into remission. There is a lot of fight in me yet and this time I will turn it towards those who matter a great deal to me: IC patients.