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IC: Hope & Help

7/23/2011

 
Often I have overwhelming feelings of gratitude that my IC is in remission.  It is important to also write about the hope that abounds in the IC community in the areas of advocacy, research and diagnostic and treatment protocols that simply did not exist 7 years ago when I stumbled down the black and painful rabbit hole into the world of IC.  From the continued efforts of the IC Association and the IC Network to doctors such as Dr. Matt Rosenberg uncovering fast and as close to painless diagnostic tools for diagnosing IC to doctors in the forefront of IC treatments such as histamine blockers and stem cell therapy treatments such as those being utilized by Dr. Elliot Landers there is hope to share with all IC patients.  It is so easy to share the truth of living with IC that it causes extreme pain, discomfort and floods an IC patient with feelings of guilt, shame and depression and it would be wrong to cover up these truths, but in the same sense, it would be wrong to only focus on these truths and not spread the word that hundreds of people are working tirelessly to help IC patients around the world. 

Plus there are countless people, myself included, who have been able to turnaround a diagnosis of 'incurable IC' and after hard work through the use of both Western and holistic medicine and treatment protocols that IC, can in fact, go into remission.  There is so much hope and help in the world of IC right now that I hope that I am able to spread to each of you suffering from IC...you are not alone and you are definitely not forgotten.  It is my hope and my truth to continue to spread the word about cutting edge IC treatments in the hope that each of you find the comfort and support for your IC.  If you have not done so I would highly encourage you to read the series of books by IC patient and advocate Catherine Simone to read her words of help and health.  It is my duty to also share my path to remission, along with the memories of pain and tragedy living with severe IC. 

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