One of my favorite movies growing up was "Mary Poppins" and among a list of favorite and memorable scenes in the movie that stand out to me was the scene in which Mary Poppins arrives, carpet bag in one hand, large black umbrella in the other hand as she flies into the house of her new charges. Mary Poppins only stays long enough to help the children according to the direction of the wind and when the wind changes direction it is time for her to move on and help another family. "Chocolat", another favorite, although modern day, book and movie shows the main character, mother and daughter, moving from village to village with the direction of the wind. And although the mother is an independent spirit all her own, it is the wind that decides their fate and the places that they dwell.
What does the wind have to do with IC? Very much indeed. Just like the wind IC changes the course and direction of our lives from the path that we thought we were on to a new course filled with pain and a sense that we no longer have control over our lives. The pain of IC is indescribable and near invisible to point out with modern medical technology (not all IC sufferers show the horrific Huner's ulcers!), yet its effects ripple through our being with the destruction of a hurricane. Left in the wake of pain we are humbled by our experience yet know that we will be forever changed by its presence. The wind can be both soothing and terrifying as one minute it is gently blowing through you hair and the next moment it is threatening to blow your house down around you. After the initial shock and terror of my diagnosis of IC back in 2005 I felt a calmness come over me like being inside the eye of a storm. Hurricane Carin was unleashed from deep within when I was told that I would have to live with the pain and fury of IC and that there was neither hope nor cure.
Today I can feel the wind not only in my hair but I can feel it blowing in my soul once more fanning the flames and inciting me to do so much more within the world of IC. Although I cannot make any formal announcements just yet about what the wind has brewed within me to unfurl at full sail, please know that there are great things ahead for ICPBSSupport, but more importantly that means there are even greater things ahead for IC patients! The wind pushes me towards a new destination and each of you, dear IC patients, are my compass and my North Star.